Events

Blue Faery: The Adrienne Wilson Liver Cancer Association

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Events

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President Andrea Wilson Attends GLI’s Advanced Advocacy Academy
11 November 2017
President Andrea Wilson received a scholarship to attended the Global Liver Institute’s (GLI) inaugural Advanced Advocacy Academy. During this two-day event, Ms. Wilson attended many sessions about various ways patient advocates can make a difference in the lives of the people they serve. Additionally, she participated in a Fireside Chat with GLI President and CEO Donna Cryer, JD, Artist and Speaker Regina Holliday and Patient and Speaker Morgan Gleason.

President Andrea Wilson pictured with attendees of the first Advanced Advocacy Academy

   
President Andrea Wilson Attends Stanford Medicine X
16 September 2017
For one week in September, Northern California becomes home to the world’s premier gathering of patients, providers, researchers, designers and technologists who are leading disruptive innovation in healthcare. A series of world-class programs, workshops and events, Stanford Medicine X, an Everyone Included™ event, is the most-discussed academic medical conference in the world. President Andrea Wilson was honored to receive an ePatient scholarship for the Presenter Track. She spoke on the mainstage on Saturday, September 16. Watch the presentation How Euphemisms Help Us Deal With Death on YouTube.

Andrea Wilson sending a silent kiss to her sister Adrienne after speaking at the Li Ka Shing Center at Stanford University in Palo Alto, Calif. on Saturday, Sept. 16, 2017.

   
President Andrea Wilson Meets Professor Pierce Chow
3 June 2017
At a press event, President Andrea Wilson discussed the merits of the SIRveNIB study with Professor Pierce Chow. Sponsored by Singapore General Hospital in collaboration with Singapore’s National Cancer Centre, National Medical Research Council, Clinical Research Institute and Sirtex Medical, SIRveNIB was a Phase III Multi-Centre Open-Label Randomized Controlled Trial of Selective Internal Radiation Therapy (SIRT) Versus Sorafenib in Locally Advanced Hepatocellular Carcinoma. While the study did not meet its primary endpoint of Overall Survival, Professor Chow indicated patients suffered fewer side effects with SIRT than sorafenib.
Professor Pierce Chow with President Andrea Wilson

Professor Pierce Chow with President Andrea Wilson

   
Blue Faery Attends ASCO 2017
2 – 6 June 2017
President Andrea Wilson and Volunteer Elizabeth Marquez returned to ASCO’s annual meeting in Chicago. Blue Faery was honored to receive an ASCO-sponsored patient advocacy booth, which saves nonprofits hundreds of dollars in exhibit costs, for the second year in a row. During the conference, Andrea attended poster and oral abstract sessions focused on Hepatocellular Carcinoma; meetings with potential partners and funders; and press events including an interview with Cure magazine. On behalf of Blue Faery’s Board, Andrea thanks volunteer Elizabeth, who did a fantastic job of running Blue Faery’s booth, explaining our mission, promoting our activities and engaging conference participants.
Volunteer Elizabeth Marquez and President Andrea Wilson

Volunteer Elizabeth Marquez and President Andrea Wilson

   
President Andrea Wilson Attends International Liver Congress
19 – 23 April 2017
President Andrea Wilson attended EASL’s International Liver Congress at the RAI Center in Amsterdam, The Netherlands. The conference was an incredible opportunity to connect with providers, advocates, organizations and companies addressing liver disease outside the United States. Andrea attended a number of sessions concentrated on HCC earning 12 CME credits. On behalf of the entire board, Andrea thanks Sirtex for sponsoring the trip and introducing Blue Faery to NGOs in Europe that focus on primary liver cancer and/or viral hepatitis.
Doug Senecal, Andrea Wilson, Ken Rabin

Andrea is pictured with Sirtex’s Senior Manager of Medical Affairs Doug Senecal (formerly Blue Faery’s Medical Research Committee Chair 2010 – 2015) and Global Communications Consultant Ken Rabin, PhD.

   
President Andrea Wilson attends ASCO GI Symposium
19 – 21 January 2017
President Andrea Wilson attended the ASCO GI Symposium at the Moscone Center in San Francisco. The symposium was a wonderful opportunity to learn about the latest research and treatments for primary liver cancer. Andrea connected with fellow patient advocates and organizations who exhibited at the symposium as well as met with potential funders and future partners. Andrea thanks the Conquer Cancer Foundation for giving her a Patient Advocate Scholarship to attend ASCO GI.
Alicia Staley_Andrea Wilson

Three-time cancer survivor and Cure Forward’s Patient Advocacy Manager Alicia Staley pictured with Blue Faery’s President Andrea Wilson

   
President Andrea Wilson attends NCCN’s Patient Advocacy Summit
9 December 2016
President Andrea Wilson attended the National Comprehensive Cancer Network’s (NCCN) Patient Advocacy Summit at the National Press Club in Washington, D.C. The focus was on Value Tools for Patients in Cancer Care. The summit provided an opportunity for a varied group of stakeholders including patients, patient advocacy organizations, providers, payers, industry and government to discuss the current value tools in cancer care available for patients. As president and founder of Blue Faery and a fierce advocate for liver cancer patients, Andrea received a scholarship to attend the summit.
President Andrea Wilson with fellow advocate Melinda Bachini

President Andrea Wilson with fellow advocate Melinda Bachini from The Cholangiocarcinoma Foundation

   
Blue Faery exhibits at The Liver Meeting
11 – 15 November 2016
President Andrea Wilson and Volunteer Elizabeth Marquez attended AASLD’s annual Liver Meeting in Boston from November 11 – 15. Blue Faery was one of many booths in ‘Nonprofit Row’ just outside the Exhibition Hall. With lots of foot traffic and liver cancer specialists at the meeting, Blue Faery’s HCC Patient Education brochures were a big hit along with our Blue Faery water bottles and Sharpies. Andrea attended a few oral sessions, but she spent most of her time with Elizabeth at the booth, meeting doctors from around the world who are trying to prevent, treat and cure liver cancer and other liver diseases. Due to overwhelming demand at the Liver Meeting, Blue Faery’s website now translates into Urdu, the most common language spoken in Pakistan.
Dr. Mohammad Ghauri from Pakistan

President Andrea Wilson, Dr. Mohammad Ghauri, and Volunteer Elizabeth Marquez

   
President Andrea Wilson attends Women in High Places
7 September 2016
President Andrea Wilson joined 36 other women in a groundbreaking conference titled Women in High Places: Leading the Global Challenge of Hepatitis and Liver Cancer Control. The conference took place at the Barclay Intercontinental Hotel in New York City, where female leaders from around the world met to discuss the challenges of viral hepatitis and liver cancer. The women examined the issues from national, institutional, patient, and community perspectives. The conference was by invitation only, and Ms. Wilson was thrilled to be connected to other women who share her passion and dedication to eradicate liver cancer.

Corinna Dan, Viral Hepatitis Policy Advisor at HHS and Lorren Sandt, Caring Ambassadors Executive Director stand with Blue Faery President Andrea Wilson during a break

   
Blue Faery attends ASCO
8 June 2016
President Andrea Wilson and new Volunteer Elizabeth Marquez attended ASCO’s annual meeting in Chicago from June 3 – 7. Blue Faery was honored to receive an ASCO-sponsored patient advocacy booth, which saves nonprofits hundreds of dollars in exhibit costs. During the conference, Andrea attended many education, poster and oral abstract sessions that focused on Hepatocellular Caricinoma, professional development (e.g., grant writing) and patient & survivor care. As part of her ASCO experience, Andrea participated in Research Advocacy Network’s Focus on Research Scholar program where she met many other patient advocates. On behalf of Blue Faery’s Board, Andrea thanks first-time volunteer Elizabeth, who did a fantastic job of running Blue Faery’s booth, explaining our mission, promoting our activities and engaging conference participants.

President Andrea Wilson and Volunteer Elizabeth Marquez set up Blue Faery’s booth.

   
President Andrea Wilson attends ALF Advocacy Hill Day
19 April 2016
President Andrea Wilson was invited by the American Liver Foundation (ALF) to attend their Advocacy Hill Day in DC. National Director of Programs Jonathan Martin stated, “We have many other conditions represented (Hep C, PBC, PSC, Biliary Atresia, NAFLD) but I would very much like to have a passionate advocate for liver cancer, and you were the first person that came to mind.” As part of their invitation, ALF sponsored Ms. Wilson’s travel expenses.
Capitol in spring

Capitol in spring

   
President Andrea Wilson attends PASC meeting
14 April 2016
In mid-April, President Andrea Wilson had the opportunity to attend NCI’s Patient Advocate Steering Committee (PASC) meeting in Bethesda, Maryland, on the NIH campus. She met many cancer survivors including Jim Stapleton, a squamous cell carcinoma cancer survivor and long-time cancer patient advocate.

President Andrea Wilson with fellow patient advocate Jim Stapleton

   
American Society of Clinical Oncology (ASCO) National Conference
29 May – 2 June 2015
President Andrea Wilson was thrilled to receive a Patient Advocate Scholarship from the Conquer Cancer Foundation to attend the ASCO conference in Chicago. Ms. Wilson learned about the latest advances in HCC research, networked with fellow advocates and patient advocacy organizations, and initiated professional relationships with healthcare providers and pharmaceutical companies focused on treating and curing liver cancer.
ASCO2015Chicago

McCormick Place at sunset

   
Advocates Unite! Conference
10 – 14 May 2015
President Andrea Wilson received a scholarship to attend the Advocates Unite! Conference, a three-day training in Washington, DC, focusing on viral hepatitis policy at the state and federal levels. The conference was sponsored by Caring Ambassadors.
Additionally, she joined other Liver Cancer Roundtable members for a meeting about the Liver Cancer Action Plan on Thursday, May 14 and participated in the Global Liver Institute’s Reimagine Liver Cancer Blue Sky Day on Wednesday, May 20.

President Andrea Wilson (first row) pictured with other advocates on the steps of the Capitol.

   
Hepatitis on the Hill
9 – 10 March 2015
President Andrea Wilson received a scholarship to attend Hepatitis on the Hill, an event hosted by the Hepatitis Appropriations Partnership (HAP), Hep B United (HBU) and National Viral Hepatitis Roundtable (NVHR). The National Alliance of State & Territorial AIDS Directors (NASTAD) provided administrative and logistical support. Hepatitis on the Hill, a constituent-based advocacy event to address the public health challenges of viral hepatitis, included 75 advocates from across the nation.

Hepatitis on the Hill Advocates

   
Blue Faery attends the Liver Cancer Roundtable
11 – 12 November 2014
Blue Faery participated in the second annual Liver Cancer Roundtable. Held in Boston this year and organized by the Caring Ambassadors Program, the Liver Cancer Roundtable brought together leading experts including hepatologists, transplant surgeons and oncologists; government employees from CDC and HHS; pharmaceutical company representatives; and charities in order to revise the liver cancer action plan. This year, Blue Faery President Andrea Wilson was the Co-Chair of the Awareness working group.

Liver Cancer Roundtable 2014