A few weeks ago, I woke up one morning unable to breathe through my nose. Congested head. Raw throat. Dry mouth. The previous weekend, I had traveled to Arkansas to surprise my dad for Father’s Day.

Earlier this month, Marina Uchenik, a long-time Blue Faery Board Director, and I attended the American Society of Clinical Oncology (ASCO) Annual Meeting in Chicago. Blue Faery did not get a booth this year, which allowed us more time to attend seminars, meet with supporters, and network with colleagues.

This week was the anniversary of the beginning of Adrienne’s liver cancer journey. I’ll never forget when an ER doctor told us, “She has tumors in her liver and lungs.”

What happened to February? It zipped by. We had two exciting Love Your Liver Live workshops for the Black/African-American communities in Atlanta and Miami.

I’m so excited 2023 is here! I don’t know about you, but 2022 was a bit … exhausting. After months of dealing with long covid, I’m starting to feel better. To feel stronger. And I’m thrilled with the programs we have coming up this year.

Recently, founding Board Director Monique Beatty, reminded me of our humble beginnings. Many years ago, we recycled toner and ink cartridges to earn revenue for Blue Faery.

You might not think about your liver health very often. If everything’s in good working order, you might not think you have to. But, according to the American Liver Foundation, liver disease affects more than 100 million Americans. The foundation cautions that when it’s left untreated, liver disease can lead to liver failure, cancer and can even be fatal—in 2020, it was the 12th leading cause of death in the US. With numbers like those, and a personal history with liver disease, former Yankees star Bernie Williams is stepping up to bat to help spread awareness about the importance of supporting your liver health.

He recently helped launch One Liver to Love in partnership with Eisai as well as Global Liver Institute (GLI) and Blue Faery, which are both patient advocacy organizations that provide education and resources to people living with liver cancer. The initiative hopes to offer support to families like Williams’ who are impacted by liver disease.

I think you just need to not assume that you know what a patient wants, you need to listen and really listen and ask more questions.

Did you know? The day Blue Faery became incorporated by the state of California — December 19 — is the same date Adrienne came to live with me in Los Angeles.

A glance at Adrienne Wilson’s online journal provides some insight into the mind of a teenager wise beyond her years.

Someone I haven’t seen in two decades did this act of kindness that fills my heart with gratitude, and she did it during Liver Cancer Awareness Month.

Meet our campaign spokesperson Cuban-born American singer Jon Secada. With multiple Grammy Awards and 15+ million records sold, Jon is one of the best-selling Latin music artists of all time.

Seeking patients & caregivers for advisory board

"Liver disease is personal to me. It has impacted my mom, my uncle and my grandfather, and I've seen first-hand the difficulties and feelings that come with it," said Williams.