President Andrea Wilson nominated for WEGO Health ‘Best in Show Podcast’ Award

WEGO Health 2018

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President Andrea Wilson nominated for WEGO Health ‘Best in Show Podcast’ Award

WEGO Health 2018

A three-time nominee for a WEGO Health Award, this year Blue Faery President Andrea Wilson is nominated for the Best In Show Podcast Award. Her podcast Better Off Bald: A Life in 147 Days is based on her unpublished memoir of raising and losing her younger sister Adrienne to liver cancer; Adrienne was only ill 147 days. Help Andrea win the award and get more recognition for all HCC patients by endorsing her HERE!

Blue Faery Attends ASCO 2018

ASCO 2018

President Andrea Wilson, Blue Faery Booth Manager Elizabeth Marquez and Board Director Rolf Taylor attended ASCO’s annual meeting in Chicago from June 1 – 5. Blue Faery was honored to receive an ASCO-sponsored patient advocacy booth, which saves nonprofits hundreds of dollars in exhibit costs, for the third year in a row. During the conference, Andrea attended oral abstract sessions focused on Hepatocellular Carcinoma; meetings with potential partners and funders; and press events including three interviews. Additionally, Andrea conducted a presentation for the staff of Imerman Angels to educate them about Blue Faery and primary liver cancer.

On behalf of Blue Faery’s Board, Andrea thanks Elizabeth, who did a fantastic job of running Blue Faery’s booth, explaining our mission, promoting our activities and engaging conference participants. Andrea also thanks Rolf who supported Elizabeth’s efforts at the booth and attended industry meetings with Andrea. Rolf’s expertise and passion for a patient-driven agenda is perfectly aligned with Blue Faery’s mission and long-term goals.

World Cancer Day 2018

Today is World Cancer Day, a day where people come together and unite in the fight against cancer.

Being told you have cancer can be a very difficult time for anyone and getting the right support is incredibly important. Over the past year, we have seen more people than ever before, coming to HealthUnlocked looking for support and to connect with other people with cancer. We had a record 38,000 of posts that directly mention the word ‘cancer’ on HealthUnlocked, with thousands more talking around the subject. Following a cancer diagnosis, friends and family often say they do not know what to do and say to someone diagnosed or living with any kind of cancer. So what can you do to help someone with cancer? We asked nine charity and non profit organisations for their advice. [Read more …]

Happy Birthday Blue Faery!

Blue Faery 15th Anniversary

Today — December 19 — is bittersweet because it marks two important anniversaries.

  • On this day, 15 years ago, Blue Faery was incorporated by the state of California. (When you file papers of incorporation, you don’t have control over the date.)
  • On this day, 23 years ago, Adrienne Wilson moved to Los Angeles to live with her older sister Andrea Wilson.

For Andrea, today marks two pivotal turning points in her life. The day she gained physical custody of Adrienne, and the day she began Blue Faery in Adrienne’s memory. Andrea hopes by Blue Faery’s 20th anniversary there will be more curative drugs for patients with advanced HCC. To advance Blue Faery’s cause, give your 100-percent tax-deductible gift today!

President Andrea Wilson Attends Hepatobiliary Conference

Andrea Wilson & Xin Wang

President Andrea Wilson attended the inaugural Hepatobiliary Cancers: Pathobiology and Translational Advances conference from December 7 – 10 in Richmond, Virginia. She was one of many sponsored speakers. Her emotional, inspirational, 10-minute presentation “Why We Need To Choose To Cure Liver Cancer” left the audience speechless.

President Andrea Wilson with 2014 Blue Faery Award Winner Dr. Xin Wang

President Andrea Wilson Attends GLI’s Advanced Advocacy Academy

President Andrea Wilson received a scholarship to attended the Global Liver Institute’s (GLI) inaugural Advanced Advocacy Academy. During this two-day event, Ms. Wilson attended many sessions about various ways patient advocates can make a difference in the lives of the people they serve. Additionally, she participated in a Fireside Chat with GLI President and CEO Donna Cryer, JD, Artist and Speaker Regina Holliday and Patient and Speaker Morgan Gleason.

 

 

President Andrea Wilson Attends Health Stigma Summit

President Andrea Wilson attended Rude2Respect’s Health Stigma Summit in Evanston, Illinois, on November 3. An invitation-only conference, Ms. Wilson was delighted to engage with other advocates as they discussed various types of health stigma, including those people diagnosed with Hepatitis C, the most common cause of primary liver cancer in the United States.

The Rude2Respect program is about challenging health stigma. The program’s goal is to create awareness of the many ways stigma is conveyed and reduce its hurtful isolating impact by using personal stories to give voice to those who experience stigma.

 

 

 

Blue Faery Exhibits at The Liver Meeting in Washington DC

President Andrea Wilson and Volunteer Elizabeth Marquez attended AASLD’s annual Liver Meeting in Washington DC from October 20 – 23. Blue Faery was one of many booths in Foundation Row in the Exhibition Hall. With hepatologists and oncologists from all over the world, Blue Faery quickly ran out of English and Chinese HCC Patient Education brochures. Many Indian doctors requested Blue Faery’s website translate into Hindi (under consideration). Additionally, Blue Faery’s tote bags were a big hit along with Blue Faery Sharpies and water bottles.

 

President Andrea Wilson Attends NCI Meeting

From October 19 – 20, President Andrea Wilson attended NCI’s Patient Advocate Steering Committee (PASC) meeting on the NCI campus. She reconnected with many cancer patient advocates who serve on NCI steering committees, task forces and cooperative groups such as SWOG and ECOG.

Cholangiocarcinoma patient and advocate Melinda Bachini with liver cancer patient advocate President Andrea Wilson

President Andrea Wilson Attends Stanford Medicine X

For one week in September, Northern California becomes home to the world’s premier gathering of patients, providers, researchers, designers and technologists who are leading disruptive innovation in healthcare. A series of world-class programs, workshops and events, Stanford Medicine X, an Everyone Included™ event, is the most-discussed academic medical conference in the world. President Andrea Wilson was honored to receive an ePatient scholarship for the Presenter Track. She spoke on the mainstage on Saturday, September 16. Watch the presentation How Euphemisms Help Us Deal With Death on YouTube.

After she spoke, Andrea blew a silent kiss to Adrienne.

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