Download Our Liver Cancer Guide

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Download Our Liver Cancer Guide

In partnership with Patient Resource LLC, we have produced the first Patient Resource Liver Cancer Guide for primary liver cancer! This guide is free for liver cancer patients, caregivers and providers.

To receive a single PDF copy, download the liver cancer guide now.

To receive bulk orders for your treatment center, email Amy Galey at Patient Resource. agaley AT patientresource DOT com

Special thanks to our sponsors Bristol Myers Squibb, Eisai, Exelixis and Genentech as well as Cancer Support Community.

Three tips to protect yourself from COVID-19

From President Andrea Wilson

COVID-19 has scared everyone! But most of us 👨‍👩‍👧 are not in the “high-risk” category.

However, if you are a cancer patient going through treatment 😷 OR if your immune system is compromised in any way, 🥺

you may be more at risk of getting the virus and you must be more careful.

Check out these three tips that kept my sister safe during her cancer journey. She never got pneumonia even when her white blood cell count was ZERO. 😮

Download our free COVID-19 checklist!

COVID-19 checklist

COVID-19 checklist

President Andrea Wilson Speaks At HCC TAG Conference

President Andrea Wilson spoke at the first HCC TAG conference held in Park City, Utah, from February 20 – 22. She showed her presentation titled I Wish, read from her bestselling book Better Off Bald and participated in a moderated discussion.

 

President Andrea Wilson Featured in SU2C Shop Stories

As part of an ongoing collaboration with Stand Up To Cancer, President Andrea Wilson has been featured in SU2C's Shop Stories. It's no surprise that Andrea Stands Up To Cancer for her beloved sister Adrienne who lost her life to primary liver cancer at the age of 15. Blue Faery is named in memory of Adrienne.

Blue Faery Attends The Liver Meeting

President Andrea Wilson, Volunteer Booth Manager Elizabeth Marquez and Board Director Matthew Loxton attended AASLD's annual Liver Meeting in Boston from November 8 – 11. More than 250 people visited Blue Faery's booth including numerous oncologists, hepatologists, nurses and medical students from all over the world. Many researchers expressed interest in applying for the Blue Faery Award. As always, Blue Faery's tote bags, water bottles and blue highlighters were a big hit with the entire crowd.

Every person who stopped by Blue Faery's booth received a free copy of Better Off Bald: A Life in 147 Days (so be sure to keep an eye on your inbox).

Pictured: Elizabeth Marquez and Matthew Loxton

President Andrea Wilson Attends Mayo SPORE Meeting

As a patient advocate representative, President Andrea Wilson attended the first Hepatobiliary SPORE Meeting at the Mayo Clinic in Rochester. Several other liver cancer advocates were present including executives from The Cholangiocarcinoma Foundation, Global Liver Institute and a survivor of Hepatocellular Carcinoma. The event included a dinner at the Mayo Foundation House as well as an all-day meeting with research updates, group discussions, and breakout sessions.

Pictured above: Dr. Lewis Roberts, Dr. Mark McNiven, Andrea Wilson, Dr. Sanford Simon, Dr. Mitesh Borad, Dr. Kabir Mody

Donna Cryer, Cynthia Chauhan, Andrea Wilson, Stacie Lindsey

Blue Faery Exhibits at ASCO 2019

ASCO 2019

President Andrea Wilson, Blue Faery Booth Manager Elizabeth Marquez and Volunteer Edward Hinton attended ASCO’s annual meeting in Chicago from May 31 – June 4. For the fourth year in a row, Blue Faery received one of the 32-coveted booths in the ASCO-sponsored patient advocacy pavilion.

During the conference, Andrea attended several sessions including the opening with guest speaker and bestselling author Dr. Atul Gawande and the ASCO Book Club. Additionally, Andrea met with over 20 current and future partners and gave two interviews.

On Sunday evening, Blue Faery hosted its 1st Annual HCC Partners Advocacy Workshop for its Blue Faery Benefactors Council. Representatives from Eisai, Exelixis and Genentech were present. The purpose of the meeting is to bring together all council members and develop a specific goal to achieve by October — Liver Cancer Awareness Month.

On behalf of Blue Faery’s Board, Andrea thanks Elizabeth and Edward, who did a fantastic job of running Blue Faery’s booth, which experienced traffic of over 400 people this year (a record!).

The most touching moment of the conference for Andrea was seeing Dr. Rafael Amado, the last doctor to treat her sister Adrienne before she died. Andrea had not seen Dr. Amado in over 17 years. A chance conversation with another doctor led to the knowledge that Dr. Amado was at ASCO. Dr. Amado, who rarely treated pediatric patients when he worked at UCLA, remembered Adrienne saying, “She was an angel.”

 

Blue Faery Exhibits at The Liver Meeting in San Francisco

President Andrea Wilson and Volunteer Booth Manager Elizabeth Marquez attended AASLD's annual Liver Meeting in San Francisco from November 9 – 13. More than 250 people visited Blue Faery's booth including numerous oncologists, hepatologists and medical students from all over the world.* Many researchers expressed interest in applying for the Blue Faery Award. As always, Blue Faery's tote bags, water bottles and blue Sharpies were a big hit with the entire crowd.

*Due to the large number of Mongolian doctors who visited our booth and Mongolia having the highest incidence of primary liver cancer in the world, Blue Faery's website now translates into Mongolian.

President Andrea Wilson Speaks At FDA

On September 26, 2018, Blue Faery President Andrea Wilson spoke at an FDA mini symposium titled Liver-Directed Therapies for Hepatocellular Carcinoma (HCC). Ms. Wilson was the only female and only non-doctor who spoke at the one-day event. She was honored to contribute to the patient's perspective about clinical trial eligibility. See her short talk on YouTube.

 

Blue Faery Hosts HCC Lunch & Learn

HCC Lunch & Learn participants

In collaboration with Eisai, Blue Faery hosted an HCC Lunch & Learn event where HCC patients, caregivers and one survivor came together to share their stories. Additionally, the group discussed treatment options and clinical trials for HCC patients. Two of the four caregivers present — Azure Klein and Cathy Anderson — are current Blue Faery volunteers. (See Blue Faery's Liver Cancer Community.) The participants traveled to New Jersey from California, Colorado, Texas, Alabama and Virginia.

Pictured: Azure Klein, Ryan Sharkey, Susan Sharkey, Cathy Anderson, Andrea Wilson, Bill Remak. Not pictured: Steve and Jane Kramer

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