Shooting for the Moon: Sisterhood and Strength in the Face of HCC

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Shooting for the Moon: Sisterhood and Strength in the Face of HCC

In her early twenties, Andrea became the legal guardian for her eight-year-old sister, Adrienne. Their lives turned upside down when at age fifteen, Adrienne was diagnosed with stage four liver cancer (hepatocellular carcinoma).

Adrienne had seemed fine. She had been experiencing some acid reflux, which Andrea assumed was just from what Adrienne had been eating. She also had some right shoulder pain and

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President Andrea Wilson nominated for WEGO Health ‘Best in Show Podcast’ Award

WEGO Health 2018

A three-time nominee for a WEGO Health Award, this year Blue Faery President Andrea Wilson is nominated for the Best In Show Podcast Award. Her podcast Better Off Bald: A Life in 147 Days is based on her unpublished memoir of raising and losing her younger sister Adrienne to liver cancer; Adrienne was only ill 147 days. Help Andrea win the award and get more recognition for all HCC patients by endorsing her HERE!

Blue Faery Attends ASCO 2018

ASCO 2018

President Andrea Wilson, Blue Faery Booth Manager Elizabeth Marquez and Board Director Rolf Taylor attended ASCO’s annual meeting in Chicago from June 1 – 5. Blue Faery was honored to receive an ASCO-sponsored patient advocacy booth, which saves nonprofits hundreds of dollars in exhibit costs, for the third year in a row. During the conference, Andrea attended oral abstract sessions focused on Hepatocellular Carcinoma; meetings with potential partners and funders; and press events including three interviews. Additionally, Andrea conducted a presentation for the staff of Imerman Angels to educate them about Blue Faery and primary liver cancer.

On behalf of Blue Faery’s Board, Andrea thanks Elizabeth, who did a fantastic job of running Blue Faery’s booth, explaining our mission, promoting our activities and engaging conference participants. Andrea also thanks Rolf who supported Elizabeth’s efforts at the booth and attended industry meetings with Andrea. Rolf’s expertise and passion for a patient-driven agenda is perfectly aligned with Blue Faery’s mission and long-term goals.

World Cancer Day 2018

Today is World Cancer Day, a day where people come together and unite in the fight against cancer.

Being told you have cancer can be a very difficult time for anyone and getting the right support is incredibly important. Over the past year, we have seen more people than ever before, coming to HealthUnlocked looking for support and to connect with other people with cancer. We had a record 38,000 of posts that directly mention the word ‘cancer’ on HealthUnlocked, with thousands more talking around the subject. Following a cancer diagnosis, friends and family often say they do not know what to do and say to someone diagnosed or living with any kind of cancer. So what can you do to help someone with cancer? We asked nine charity and non profit organisations for their advice. [Read more …]

Blue Faery Joins HealthUnlocked To Create HCC Patient Forum

Liver Cancer Community

Blue Faery is proud to join HealthUnlocked to create the first online patient forum specifically for HCC patients and caregivers. Moderated by two HCC caregivers who lost their loved ones to this deadly disease, Blue Faery’s Liver Cancer Community is open to all HCC patients and their caregivers. The online, private, HIPPA-compliant forum respects patients and caregivers; they may join under an alias if they so desire though all communications are only seen by members.

President Andrea Wilson Attends Hepatobiliary Conference

Andrea Wilson & Xin Wang

President Andrea Wilson attended the inaugural Hepatobiliary Cancers: Pathobiology and Translational Advances conference from December 7 – 10 in Richmond, Virginia. She was one of many sponsored speakers. Her emotional, inspirational, 10-minute presentation “Why We Need To Choose To Cure Liver Cancer” left the audience speechless.

President Andrea Wilson with 2014 Blue Faery Award Winner Dr. Xin Wang

Seeking Adults With Primary Liver Cancer

Seeking Adults With Primary Liver Cancer (Hepatocellular Carcinoma)

If you are an adult diagnosed with primary liver cancer (i.e., Hepatocellular Carcinoma), you may qualify for a research study. You will be paid up to $175 for your participation in an individual telephone interview.

L&E Research wants to hear from patients with liver cancer to learn more about their symptoms. The telephone interview will last one hour.

If you would like to participate in this research project, please contact Loretta at (919) 307-5762 or lmclaughlin@leresearch.com

 

President Andrea Wilson Attends GLI’s Advanced Advocacy Academy

President Andrea Wilson received a scholarship to attended the Global Liver Institute’s (GLI) inaugural Advanced Advocacy Academy. During this two-day event, Ms. Wilson attended many sessions about various ways patient advocates can make a difference in the lives of the people they serve. Additionally, she participated in a Fireside Chat with GLI President and CEO Donna Cryer, JD, Artist and Speaker Regina Holliday and Patient and Speaker Morgan Gleason.

 

 

President Andrea Wilson Attends Health Stigma Summit

President Andrea Wilson attended Rude2Respect’s Health Stigma Summit in Evanston, Illinois, on November 3. An invitation-only conference, Ms. Wilson was delighted to engage with other advocates as they discussed various types of health stigma, including those people diagnosed with Hepatitis C, the most common cause of primary liver cancer in the United States.

The Rude2Respect program is about challenging health stigma. The program’s goal is to create awareness of the many ways stigma is conveyed and reduce its hurtful isolating impact by using personal stories to give voice to those who experience stigma.

 

 

 

Blue Faery Exhibits at The Liver Meeting in Washington DC

President Andrea Wilson and Volunteer Elizabeth Marquez attended AASLD’s annual Liver Meeting in Washington DC from October 20 – 23. Blue Faery was one of many booths in Foundation Row in the Exhibition Hall. With hepatologists and oncologists from all over the world, Blue Faery quickly ran out of English and Chinese HCC Patient Education brochures. Many Indian doctors requested Blue Faery’s website translate into Hindi (under consideration). Additionally, Blue Faery’s tote bags were a big hit along with Blue Faery Sharpies and water bottles.

 

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