President Andrea Wilson Attends GLI’s Advanced Advocacy Academy

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President Andrea Wilson Attends GLI’s Advanced Advocacy Academy

President Andrea Wilson received a scholarship to attended the Global Liver Institute’s (GLI) inaugural Advanced Advocacy Academy. During this two-day event, Ms. Wilson attended many sessions about various ways patient advocates can make a difference in the lives of the people they serve. Additionally, she participated in a Fireside Chat with GLI President and CEO Donna Cryer, JD, Artist and Speaker Regina Holliday and Patient and Speaker Morgan Gleason.

 

 

President Andrea Wilson Attends Health Stigma Summit

President Andrea Wilson attended Rude2Respect’s Health Stigma Summit in Evanston, Illinois, on November 3. An invitation-only conference, Ms. Wilson was delighted to engage with other advocates as they discussed various types of health stigma, including those people diagnosed with Hepatitis C, the most common cause of primary liver cancer in the United States.

The Rude2Respect program is about challenging health stigma. The program’s goal is to create awareness of the many ways stigma is conveyed and reduce its hurtful isolating impact by using personal stories to give voice to those who experience stigma.

 

 

 

Blue Faery Exhibits at The Liver Meeting in Washington DC

President Andrea Wilson and Volunteer Elizabeth Marquez attended AASLD’s annual Liver Meeting in Washington DC from October 20 – 23. Blue Faery was one of many booths in Foundation Row in the Exhibition Hall. With hepatologists and oncologists from all over the world, Blue Faery quickly ran out of English and Chinese HCC Patient Education brochures. Many Indian doctors requested Blue Faery’s website translate into Hindi (under consideration). Additionally, Blue Faery’s tote bags were a big hit along with Blue Faery Sharpies and water bottles.

 

President Andrea Wilson Attends NCI Meeting

From October 19 – 20, President Andrea Wilson attended NCI’s Patient Advocate Steering Committee (PASC) meeting on the NCI campus. She reconnected with many cancer patient advocates who serve on NCI steering committees, task forces and cooperative groups such as SWOG and ECOG.

Cholangiocarcinoma patient and advocate Melinda Bachini with liver cancer patient advocate President Andrea Wilson

President Andrea Wilson Attends Stanford Medicine X

For one week in September, Northern California becomes home to the world’s premier gathering of patients, providers, researchers, designers and technologists who are leading disruptive innovation in healthcare. A series of world-class programs, workshops and events, Stanford Medicine X, an Everyone Included™ event, is the most-discussed academic medical conference in the world. President Andrea Wilson was honored to receive an ePatient scholarship for the Presenter Track. She spoke on the mainstage on Saturday, September 16. Watch the presentation How Euphemisms Help Us Deal With Death on YouTube.

After she spoke, Andrea blew a silent kiss to Adrienne.

Blue Faery Wins Best of Burbank

Each year, in and around the Burbank area, the Burbank Award Program chooses only the best local businesses. The program focuses on companies that exemplify the best of small business; often leading through customer service and community involvement.  Blue Faery is among a very small group of companies that have won the Best of Burbank Award for five consecutive years. This distinction has qualified Blue Faery for the 2017 Burbank Business Hall of Fame.

President Andrea Wilson Meets Professor Pierce Chow

Professor Pierce Chow with President Andrea Wilson

At a press event, President Andrea Wilson discussed the merits of the SIRveNIB study with Professor Pierce Chow. Sponsored by Singapore General Hospital in collaboration with Singapore’s National Cancer Centre, National Medical Research Council, Clinical Research Institute and Sirtex Medical, SIRveNIB was a Phase III Multi-Centre Open-Label Randomized Controlled Trial of Selective Internal Radiation Therapy (SIRT) Versus Sorafenib in Locally Advanced Hepatocellular Carcinoma. While the study did not meet its primary endpoint of Overall Survival, Professor Chow indicated patients suffered fewer side effects with SIRT than sorafenib.

Blue Faery Attends ASCO 2017

Volunteer Elizabeth Marquez and President Andrea Wilson

President Andrea Wilson and Volunteer Elizabeth Marquez returned to ASCO’s annual meeting in Chicago from June 2 – 6. Blue Faery was honored to receive an ASCO-sponsored patient advocacy booth, which saves nonprofits hundreds of dollars in exhibit costs, for the second year in a row. During the conference, Andrea attended poster and oral abstract sessions focused on Hepatocellular Carcinoma; meetings with potential partners and funders; and press events including an interview with Cure magazine. On behalf of Blue Faery’s Board, Andrea thanks volunteer Elizabeth, who did a fantastic job of running Blue Faery’s booth, explaining our mission, promoting our activities and engaging conference participants.

President Andrea Wilson Attends International Liver Congress

Doug Senecal, Andrea Wilson, Ken Rabin

From Wednesday, April 19 – Sunday, April 23, President Andrea Wilson attended EASL’s International Liver Congress at the RAI Center in Amsterdam, The Netherlands. The conference was an incredible opportunity to connect with providers, advocates, organizations and companies addressing liver disease outside the United States. Andrea attended a number of sessions concentrated on HCC earning 12 CME credits. On behalf of the entire board, Andrea thanks Sirtex for sponsoring the trip and introducing Blue Faery to NGOs in Europe that focus on primary liver cancer and/or viral hepatitis.

Andrea is pictured with Sirtex’s Senior Manager of Medical Affairs Doug Senecal (formerly Blue Faery’s Medical Research Committee Chair 2010 – 2015) and Global Communications Consultant Ken Rabin, PhD.

 

World Cancer Day

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