World Cancer Day

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World Cancer Day

President Andrea Wilson attends ASCO GI Symposium

Alicia Staley_Andrea Wilson

From Thursday, January 19 – Saturday, January 21, President Andrea Wilson attended the ASCO GI Symposium at the Moscone Center in San Francisco. The symposium was a wonderful opportunity to learn about the latest research and treatments for primary liver cancer. Andrea connected with fellow patient advocates and organizations who exhibited at the symposium as well as met with potential funders and future partners. Andrea thanks the Conquer Cancer Foundation for giving her a Patient Advocate Scholarship to attend ASCO GI.

Andrea is pictured here with three-time cancer survivor and Cure Forward‘s Patient Advocacy Manager Alicia Staley.

 

President Andrea Wilson attends NCCN’s Patient Advocacy Summit

President Andrea Wilson with fellow advocate Melinda Bachini
 On Friday, December 9, President Andrea Wilson attended the National Comprehensive Cancer Network’s (NCCN) Patient Advocacy Summit at the National Press Club in Washington, D.C. The focus was on Value Tools for Patients in Cancer Care. The summit provided an opportunity for a varied group of stakeholders including patients, patient advocacy organizations, providers, payers, industry and government to discuss the current value tools in cancer care available for patients. As president and founder of Blue Faery and a fierce advocate for liver cancer patients, Andrea received a scholarship to attend the summit.
Andrea is pictured her with Melinda Bachini, cholangiocarcinoma cancer patient and advocate.

Blue Faery exhibits at The Liver Meeting

Dr. Mohammad Ghauri from Pakistan

President Andrea Wilson and Volunteer Elizabeth Marquez attended AASLD’s annual Liver Meeting in Boston from November 11 – 15. Blue Faery was one of many booths in ‘Nonprofit Row’ just outside the Exhibition Hall. With lots of foot traffic and liver cancer specialists at the meeting, Blue Faery’s HCC Patient Education brochures were a big hit along with our Blue Faery water bottles and Sharpies. Andrea attended a few oral sessions, but she spent most of her time with Elizabeth at the booth, meeting doctors from around the world who are trying to prevent, treat and cure liver cancer and other liver diseases. Andrea and Elizabeth are pictured here with Dr. Mohammad Ghauri from Pakistan.

Due to overwhelming demand at the Liver Meeting, Blue Faery’s website now translates into Urdu, the most common language spoken in Pakistan.

President Andrea Wilson attends Women in High Places

President Andrea Wilson joined 36 other women in a groundbreaking conference titled Women in High Places: Leading the Global Challenge of Hepatitis and Liver Cancer Control. The conference took place at the Barclay Intercontinental Hotel in New York City, where female leaders from around the world met to discuss the challenges of viral hepatitis and liver cancer. The women examined the issues from national, institutional, patient, and community perspectives. The conference was by invitation only, and Ms. Wilson was thrilled to be connected to other women who share her passion and dedication to eradicate liver cancer.

World Hepatitis Day

World Hepatitis Day

Every action is an action towards elimination of viral hepatitis.

This year sees the first ever World Health Organization’s Global Strategy for Viral Hepatitis, which sets a goal of eliminating viral hepatitis as a public health threat by 2030.

Let’s join together on World Hepatitis Day (28 July) to make the elimination of viral hepatitis our next greatest achievement.

Blue Faery attends ASCO

President Andrea Wilson and new Volunteer Elizabeth Marquez attended ASCO’s annual meeting in Chicago from June 3 – 7. Blue Faery was honored to receive an ASCO-sponsored patient advocacy booth, which saves nonprofits hundreds of dollars in exhibit costs. During the conference, Andrea attended many education, poster and oral abstract sessions that focused on Hepatocellular Caricinoma, professional development (e.g., grant writing) and patient & survivor care. As part of her ASCO experience, Andrea participated in Research Advocacy Network’s Focus on Research Scholar program where she met many other patient advocates. On behalf of Blue Faery’s Board, Andrea thanks first-time volunteer Elizabeth, who did a fantastic job of running Blue Faery’s booth, explaining our mission, promoting our activities and engaging conference participants.

President Andrea Wilson attends ALF Advocacy Hill Day

Capitol in spring

President Andrea Wilson was invited by the American Liver Foundation (ALF) to attend their Advocacy Hill Day in DC. National Director of Programs Jonathan Martin stated, “We have many other conditions represented (Hep C, PBC, PSC, Biliary Atresia, NAFLD) but I would very much like to have a passionate advocate for liver cancer, and you were the first person that came to mind.” As part of their invitation, ALF sponsored Ms. Wilson’s travel expenses.

President Andrea Wilson attends PASC meeting

In mid-April, President Andrea Wilson had the opportunity to attend NCI’s Patient Advocate Steering Committee (PASC) meeting in Bethesda, Maryland, on the NIH campus. She met many cancer survivors including Jim Stapleton, a squamous cell carcinoma cancer survivor and long-time cancer patient advocate.

 

 

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