World Cancer Day 2018

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    World Cancer Day 2018

    Today is World Cancer Day, a day where people come together and unite in the fight against cancer.

    Being told you have cancer can be a very difficult time for anyone and getting the right support is incredibly important. Over the past year, we have seen more people than ever before, coming to HealthUnlocked looking for support and to connect with other people with cancer. We had a record 38,000 of posts that directly mention the word ‘cancer’ on HealthUnlocked, with thousands more talking around the subject. Following a cancer diagnosis, friends and family often say they do not know what to do and say to someone diagnosed or living with any kind of cancer. So what can you do to help someone with cancer? We asked nine charity and non profit organisations for their advice. [Read more …]

    Blue Faery Joins HealthUnlocked To Create HCC Patient Forum

    Liver Cancer Community

    Blue Faery is proud to join HealthUnlocked to create the first online patient forum specifically for HCC patients and caregivers. Moderated by two HCC caregivers who lost their loved ones to this deadly disease, Blue Faery’s Liver Cancer Community is open to all HCC patients and their caregivers. The online, private, HIPPA-compliant forum respects patients and caregivers; they may join under an alias if they so desire though all communications are only seen by members.

    President Andrea Wilson Attends Hepatobiliary Conference

    Andrea Wilson & Xin Wang

    President Andrea Wilson attended the inaugural Hepatobiliary Cancers: Pathobiology and Translational Advances conference from December 7 – 10 in Richmond, Virginia. She was one of many sponsored speakers. Her emotional, inspirational, 10-minute presentation “Why We Need To Choose To Cure Liver Cancer” left the audience speechless.

    President Andrea Wilson with 2014 Blue Faery Award Winner Dr. Xin Wang

    Seeking Adults With Primary Liver Cancer

    Seeking Adults With Primary Liver Cancer (Hepatocellular Carcinoma)

    If you are an adult diagnosed with primary liver cancer (i.e., Hepatocellular Carcinoma), you may qualify for a research study. You will be paid up to $175 for your participation in an individual telephone interview.

    L&E Research wants to hear from patients with liver cancer to learn more about their symptoms. The telephone interview will last one hour.

    If you would like to participate in this research project, please contact Loretta at (919) 307-5762 or lmclaughlin@leresearch.com

     

    President Andrea Wilson Attends GLI’s Advanced Advocacy Academy

    President Andrea Wilson received a scholarship to attended the Global Liver Institute’s (GLI) inaugural Advanced Advocacy Academy. During this two-day event, Ms. Wilson attended many sessions about various ways patient advocates can make a difference in the lives of the people they serve. Additionally, she participated in a Fireside Chat with GLI President and CEO Donna Cryer, JD, Artist and Speaker Regina Holliday and Patient and Speaker Morgan Gleason.

     

     

    President Andrea Wilson Attends Health Stigma Summit

    President Andrea Wilson attended Rude2Respect’s Health Stigma Summit in Evanston, Illinois, on November 3. An invitation-only conference, Ms. Wilson was delighted to engage with other advocates as they discussed various types of health stigma, including those people diagnosed with Hepatitis C, the most common cause of primary liver cancer in the United States.

    The Rude2Respect program is about challenging health stigma. The program’s goal is to create awareness of the many ways stigma is conveyed and reduce its hurtful isolating impact by using personal stories to give voice to those who experience stigma.

     

     

     

    Blue Faery Exhibits at The Liver Meeting in Washington DC

    President Andrea Wilson and Volunteer Elizabeth Marquez attended AASLD’s annual Liver Meeting in Washington DC from October 20 – 23. Blue Faery was one of many booths in Foundation Row in the Exhibition Hall. With hepatologists and oncologists from all over the world, Blue Faery quickly ran out of English and Chinese HCC Patient Education brochures. Many Indian doctors requested Blue Faery’s website translate into Hindi (under consideration). Additionally, Blue Faery’s tote bags were a big hit along with Blue Faery Sharpies and water bottles.

     

    President Andrea Wilson Attends NCI Meeting

    From October 19 – 20, President Andrea Wilson attended NCI’s Patient Advocate Steering Committee (PASC) meeting on the NCI campus. She reconnected with many cancer patient advocates who serve on NCI steering committees, task forces and cooperative groups such as SWOG and ECOG.

    Cholangiocarcinoma patient and advocate Melinda Bachini with liver cancer patient advocate President Andrea Wilson

    Caregivers Wish Liver Cancer Received Greater Public Awareness in the U.S., New Survey Reveals

    Bristol-Myers Squibb Company, in collaboration with Blue Faery, announced the findings from a new survey exploring the experiences of caregivers of people living with early or advanced stage liver cancer in the U.S. To address the needs these caregivers identified in the survey and in recognition of Liver Cancer Awareness Month, Bristol-Myers Squibb and Blue Faery have launched LiverCancerOutlook.com, a dedicated website offering information about liver cancer and providing links to additional resources for patients and caregivers. Learn more about the survey and website here.

    Note: Blue Faery received nominal compensation for its time spent as an advisor on the Liver Cancer Outlook Survey and related content.

    President Andrea Wilson Attends Stanford Medicine X

    For one week in September, Northern California becomes home to the world’s premier gathering of patients, providers, researchers, designers and technologists who are leading disruptive innovation in healthcare. A series of world-class programs, workshops and events, Stanford Medicine X, an Everyone Included™ event, is the most-discussed academic medical conference in the world. President Andrea Wilson was honored to receive an ePatient scholarship for the Presenter Track. She spoke on the mainstage on Saturday, September 16. Watch the presentation How Euphemisms Help Us Deal With Death on YouTube.

    After she spoke, Andrea blew a silent kiss to Adrienne.

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